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Multi Agency Information Sharing & Information Governance Summit: Speaker News and Updates

Chaired by Christopher Fincken, Chairman of the UK Caldicott Guardian Council, this summit focuses on multi agency information sharing and information governance; ensuring effective sharing of information across organisations. Through national updates, practical case studies and extended expert sessions the conference will support you to deliver effective multi agency sharing in your service and practice.

Speaker updates & News:

Multi Agency Information Sharing: National Update

Charlotte Piper Assistant Director Centre of Excellence for Information Sharing

  • ensuring effective multi agency sharing
  • overcoming cultural barriers to information sharing within a multi agency setting
  • current issues and solutions
  • moving forward

Charlotte Piper Full Presentation Click Here

In her presentation charlotte discussed what the Centre of Excellence for information Sharing is and how they support organisations in joined up services. Charlotte stated:

“The Centre of Excellence for information Sharing is neutrally positioned between central government and local places. We are actively working with local places to identify and solve their information sharing issues.”

“We work with specific organisations to work on integration of information and to identify issues and work with them to improve those services”

“We work across a wide range of policy areas multi-agency safeguarding, integrating health and social care, troubled families, getting people into work and mental health and policing”

“Our aim is to improve outcomes for people, as a direct result of improved information sharing between partner agencies seeking to transform their services”

“We need to have this vision people often have complex and multiple needs and therefore require a multi-agency response, by having a co-ordinated, joined-up response from local agencies, people receive better support. Sharing information between organisations helps them to integrate and achieve this.”

“Transformation of services – there are 3 things that you need to know about, the population, the whole picture of services and the evaluation of your service”

“We are focusing on the people aspect of information sharing – these are cross- cutting across policy and place. For example Leadership, managing risk, citizen engagement, partnership working and trust”

“You need to balance the risk of sharing information with the risk of not sharing. Put in place appropriate processes to provide reassurance around the sharing of information. Facilitate risk taking within a framework which encourages professionals to use their judgement and to innovate”

“Citizen engagement is key. Engaging citizens will alleviate public fears, create a co-designed approach to service reform and information sharing and empower people to make informed decisions about consent to their information being shared.”

“Working in partnership to deliver an agreed outcome requires an understanding of the partner organisations' the aims and drivers, culture and ways of working, governance, systems and processes. To enable joined up thinking, there needs to be a shared language, understanding and endeavour”

“Diagnosing the barriers is a first step on the information sharing journey.”

“Capturing and sharing the learning from local places will support more partnerships to move in the right direction.”

“Developing a cross-government approach will be essential for success at scale and pace.”

“Recognising that the 'people' aspects to information sharing are equally as important as the legal and technical ones, is an important step forward.”

Charlotte Piper Presentation Abstract:

Local public services are increasingly working in partnership; for example, to join up support around an individual with complex health and care needs. The aim in this case, is to improve the outcomes for the individual whilst reducing the number of expensive unplanned hospital admissions. However, services that wish to join up or integrate often encounter barriers to sharing information. These may be of the legal or technical kind. But our experience shows they are equally (or more) likely to be about issues such as trust, leadership and workforce development.

The Centre of Excellence for Information Sharing is a unique local-national collaboration, seeking to improve information sharing, often within multi-agency settings. Using examples of where the Centre has worked with local places that are integrating health and social care, protecting children from harm or supporting people in mental health crisis, the presentation will describe the barriers to information sharing, and the things we need to pay attention to if we are to overcome those barriers. It also looks ahead at what the conditions for success, nationally and locally, might look like. To see more about the Centre’s work in these areas please visit: www.informationsharing.org.uk/policy-areas

Summary

Why information sharing is important:

  • Information sharing is much more than a narrow technical exercise. Done properly, it enables us to address challenging issues such as child safeguarding and reducing unplanned hospital admissions.
  • People with complex and multiple needs require a multi-agency response, often against a backdrop of reducing budgets.
  • Public services that wish to join up or integrate in order to provide better outcomes for individuals and families, often encounter barriers to sharing information.

Key learning:

  • Because local agencies such as local councils, police, health and the VCS need to work together on the ground, and share information in order to do so effectively, there needs to be a cross-government approach to information sharing.
  • Many of the barriers to information sharing will not be solved with IT or legal solutions alone. Barriers such as trust, leadership and workforce development need to be acknowledged and addressed.
  • There needs to be a 'bridge' between policy communities (such as child protection), and specialist information communities (such as information governance), so they can work together to overcome the barriers to information sharing.

Charlotte Piper Biography:

Since the Centre’s inception in 2014, Charlotte has led the Centre’s national engagement, building strong links with national government and agencies.

Prior to this, Charlotte provided information sharing support to local areas as part of the Public Service Transformation Network, helping to improve services for residents.  In this role she successfully promoted a deeper understanding in central government of the information sharing issues faced by local places.

Charlotte has spent over 10 years working on change and transformation for national government. Prior to her work in the civil service, Charlotte gained hands-on experience in two London boroughs, working on corporate strategy and stakeholder engagement. Before that she was a foundation stage teacher and had a spell in academia.

Qualifications: Degree in Social and Political Sciences, Cambridge University; Masters degree in International Development, University of East Anglia; post-graduate research at University College London.

Multi Agency Information Sharing: Learning from case study breaches by NHS and Social Care organisations

Stacey Egerton Lead Policy Officer Public Services Team - Strategic Liaison The Information Commissioners Office

  • the role of the Information Commissioner
  • data sharing and the data sharing code of practice
  • fair processing notices and privacy impact assessments
  • learning from case studies of breaches by NHS and Social Care organisations
  • DPA changes in line with Europe

Stacey Egerton Full Presentation Click Here

In her presentation Stacey discussed: 

“There are a lot of challenges for data sharing, from the legal perspective and the data protection act the challenges can include data flows and data controllership, consent and fair processing and the lack of knowledge/understanding”

“Look at our good practice guides for data sharing – Getting it Right.. Good Practice”

“We recommend that you do privacy impact assessments – to ensure you are doing the right thing. There is also a check list that goes through the processes in question form. This should be standard when sharing information. Under new legislations privacy impact assessment will be becoming mandatory from May 2018”

Under the DPA, data controllers must tell individuals:

  • Who they are – The identity of the data controller
  • What they are intending to do with the data – Purposes for processing
  • Any other information necessary in the circumstances to ensure processing is fair

Under the GDPR, data controllers must tell individuals: (not a full list of requirements)

  • Identity and contact details of the controller,
  • The purposes for processing and the legal basis
  • The particular legitimate interest being relied upon (if relying on that condition for processing)
  • Recipients/categories of recipients
  • Details of overseas transfers & details of any adequacy decision/absence of such a decision
  • Details of retention periods
  • Existence of certain rights
  • The fact that consent can be withdrawn (if relying on consent)
  • Right to lodge a complaint

“The GDPR is coming in to effect in May 2018”  

https://ico.org.uk/for-organisations/data-protection-reform/overview-of-the-gdpr/

https://ico.org.uk/for-organisations/guide-to-data-protection/privacy-notices-transparency-and-control/  

https://ico.org.uk/for-organisations/guide-to-data-protection/privacy-notices-transparency-and-control/  

Stacey Egerton Biography:

Stacey joined the Information Commissioners Office in 2012 and is currently a Senior Policy Officer within the ICO’s Strategic Liaison - Public Services Team. She provides advice and support to a range of organisations in the health, education and local authority sectors regarding information rights and data privacy.

Stacey has responsibility for some of the teams work around multi agency data sharing including, integrated health and social care, troubled families and devolution. She has provided advice to numerous stakeholders around developing data sharing agreements and privacy impact assessments in relation to these initiatives.

Before joining the ICO, Stacey completed a Law degree and worked in the public sector and then as a family law advisor and paralegal.

EXTENDED SESSION: Meeting a request for information from an external organisation What are the issues Caldicott Guardians are facing on a daily basis?

Christopher Fincken Chair UK Caldicott Guardian Council

  • multi agency information sharing in practice: what are the issues Caldicott Guardians are facing on a daily basis?
  • implementing the duty to share information: ethical decision making
  • developing your skills as an effective Caldicott Guardian
  • introducing the Caldicott Manual
  • developing the role of the Caldicott Guardian in social care
  • multi agency sharing issues that have come to the Caldicott Guardian
  • our approach to difficult decisions and case studies in practice
  • rules on disclosure of personal information to the police

Christopher Fincken Full Presentation Click Here

In his Christopher Fincken discussed: 

“Caldicott Guardians bring to bear ethical as well as legal considerations, making fine judgements about human situations that are rarely codified and could not be done by a machine.”

“We are introducing a new process for caldicott Guardians – to make them more public facing and for everyone to know who they are – we are suggesting a generic email address specifically for the organisations caldicott Guardian”

“The Caldicott Guardian should be dealing with the exceptional – ie things that do not happen on a daily basis but have not happened before”

“One of the things we get back is its all so complex what is the right thing to do?”

“Why don’t we share? There are legal, financial, culture and technical obstructions. I feel that the financial obstruction is the key one. You need the finance to share pay for the processes, equipment etc.”

Do Ethics drive our behaviour, or the law? Does the law reflect ethics? I general say go with what you think is right, because the law supports ethics.

The four ‘pillars’ of ethics:

  • Autonomy – respect for the patient’s right to self-determination
  • Beneficence – the duty to ‘do good’
  • Non-Maleficence – the duty to ‘not do bad’
  • Justice – to treat all people equally and equitably.

“There will be consequences to your decisions some may be foreseen and some unforeseen. But you need to think about the consequences for both doing something and not doing something”

“If you are going to reinvent the wheel – ask for advice

“The NEW Cladicott Guardian Manual has been launched – this document gives you pointers. Its not about what you should and should not do.”

https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/581213/cgmanual.pdf

“The Council is looking at creating The Caldicott Casebook 2017 – this will be a library of health and social care non identifiable case studies for web publication and training. Case studies for consideration welcome to ukcgcsecretariat@nhs.net

“Multi Agency issues that have come to the Caldicott Guardian include MARAC’s MAPPAS, Missing People, Police and Safeguarding”

INFORMATION CAN BE SHARED ONLY:

  1. With Valid Consent (For Consent to be valid they must have mental capacity) ALWAYS ask the Patient unless there are good reasons not to.
  2. When required by Law (Mandatory)
  3. When there is a legal gateway (Permissible)

When No one knows, It’s not clear, No one can agree, Ask the Caldicott Guardian!

Christopher Fincken Biography:

Christopher Fincken is currently (Feb 2017) Chairman of the UK Council of Caldicott Guardians (UKCCG), and works closely with the office of the National Data Guardian. He was a Caldicott Guardian for over ten years in an Acute NHS Hospital Trust serving a cathedral city and large rural population before volunteering as a Caldicott Guardian for Marie Curie, the leading UK charity which provides home nursing care and hospice care for people with a terminal illness.

He was also an independent member of the National Information Governance Committee of the Care Quality Commission (NIGC - CQC) until it’s dissolution in 2015.

He represented UKCCG on the NHS Protect Strategy Implementation Group and was a member of the NHS Commissioning Board’s IG Professional Leadership Group. He was also Chair of the Honest Broker PIA Steering Group and a member of the cross government data sharing workshop addressing barriers to information sharing in relation to gang violence. He has a particular interest in Multi Agency Risk Assessment Conferences on Domestic Violence (MARAC’s) and Multi Agency Public Protection Arrangements (MAPPA) and is the author of “Striking the Balance”, guidance for information sharing in relation to Domestic Violence published by the Department of Health. 

He combines a deep knowledge of the challenges that real life presents with a passion to understand and unravel problems to try and find the best solution. He writes, lectures, and provides innovative, memorable and challenging training all based on practical experience! In addition he provides advice and guidance to an extensive range of organisations both local and national on Caldicott Guardian, confidentiality, information sharing, information governance and data protection.

Future events of interest:

Caldicott Guardian Training Course

We are running this event in London on  Friday 28 April 2017Friday 19 May 2017Monday 19 June 2017Monday 17 July 2017Friday 6 October 2017Friday 3 November 2017 and Friday 15 December 2017 and in Manchester on Wednesday 6 December 2017

Caldicott Guardians: National Annual Conference
Monday 15 May 2017 
De Vere West One Conference Centre, London

Information Governance Summit 2017 Ensuring Adherence to the National Data Security Standards for Health and Social Care
Monday 26 June 2017 
De Vere West One Conference Centre, London

Caldicott Guardian: National Conference 2017
Wednesday 18 October 2017 
The Studio Conference Centre, Birmingham


24 February 2017

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