Skip navigation

Patient Reported Outcome Measures

News and presentations from today’s conference developed in association with Mr Bibhas Roy, Consultant Orthopaedic Surgeon & Virtual Orthopaedic Clinic Lead, Central Manchester University Hospitals NHS Foundation Trust and chaired by Prof W Angus Wallace, Division of Orthopaedic and Accident Surgery, University of Nottingham/Nottingham University Hospitals NHS. This conference focused on developments in Patient Reported Outcome Measures (PROMs) and implementing PROMs effectively in clinical practice.

The Patient and PROMs
Dr Claire Corps
, Patient Leader, Medical Research Scientist and Co-chair, Measurement workstream, increasing activation in CKD, NHS England

Claire spoke about how experience of co-development of a PROM and a PREM for renal patients from a patient perspective.

Pre-Conference Abstract: Co-Production

Having been a renal patient since childhood I have grown up with professional medical people around me and have always been encouraged to ask questions and make my voice heard. 
As an adult I was lucky enough to follow up my interest in Transplantation with studying for a PhD in Organ Preservation for Transplantation and continued to ask questions and ensure my views were taken into account. 
As a scientist I have been involved in running several clinical trials using various different PROMs and PREMs and seeing how often the things which the patients want to know about are not covered in the questionnaires. Therefore when I was asked to be involved in Transforming Participation in Chronic Kidney Disease which was to be a co-produced piece of work looking at different aspects of the treatment and quality of life of patients with renal disease, I jumped at the opportunity.
I became the co-chair of the Measurement Work Stream which had the job of coming up with a PROM and a PREM which could be used nationally on an annual basis in the Renal units of the UK.
This is an example of patients and professionals working together to achieve the goal of producing something which would be accepted by all members of the renal community and would be of interest to all.

Full PowerPoint Presentation

NHS England Update: Measuring Patient Outcomes & Experience
The results and implications of the National PROMs Consultation
Professor Alf Collins
, Clinical Director of The Personalised Care Group, NHS England

Pre-Conference Abstract:
Patients want the NHS to provide a personalised service, as do local commissioners and providers.  Most clinicians feel that they do indeed pay attention to ‘what matters’ to patients, yet patient reported experience data demonstrate that we could do better. 

Clearly, measurement has a role to play in supporting patients to feel respected, heard and involved. Measurement also has a role to play in helping the system understand the degree to which it is adding value to people’s lives. 

This session will provide an overview of NHS England’s approach to the use of patient reported outcome data and will focus on the use of 2 new measures- in the fields of cancer and long term conditions. 

Full PowerPoint Presentation

Using PROMs to measure Longer Term Outcomes
Antoinette Edwards
, Member, Major Trauma PROMs Steering Group, Executive Director, The Trauma and Audit Research Network

Pre-Conference Abstract:
In 2014, Antoinette led the first Major Trauma PROMs feasibility project commissioned by NHS England.  Since the end of the 12 month pilot phase in 2015, the PROMs programme has continued and is now routinely collected by all Major Trauma Centres across England.  Antoinette continues to lead on this important work.

Antoinette’s presentation will focus on progress to date including:

  • Using PROMs to improve our understanding on how major injury has impacted not just on patients’ health but their everyday routines inc. return to work
  • Challenges of running major trauma PROMs for patients in the acute care setting  
  • Reporting back to hospitals
  • Developing Major Trauma PROMs for children
  • How PROMs can support trauma research
  • Future plans 

Full PowerPoint Presentation

Related events:

Patient Leadership Summit
Friday 15 December 
De Vere West One Conference Centre, London

Clinical Audit for Improvement in Mental Health
Friday 9 February 
De Vere West One Conference Centre, London

Patient Experience Insight Summit
Thursday 22 February 
The Studio Conference Centre, Birmingham

Quality Summit 2018 Meeting and Measuring Progress against the CQC Quality Ratings
Monday 30 April 
De Vere West One Conference Centre, London

11 December 2017


    Partner Organisations

    The Tavistock and Portman NHS Foundation TrustInPracticeClinical Audit Support CentrePlayoutJust For Nurses
    GGI (Good Governance Institute) accredited conferences CPD Member ASGBI (Association of Surgeons of Great Britain and Ireland) professional partner BADS (British Association of Day Surgery) accredited conferences