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Caldicott Principles & Information Sharing in End of Life Care

Tuesday 4 Oct 2022


Find out more about virtual attendance

Follow the conference on twitter #CaldicottEndofLife

Healthcare Conferences UK in association with Christopher Fincken Independent Member UK Caldicott Guardian Council, (Former Chairman) are pleased to announce this virtual conference which will focus on Information Sharing and Caldicott Principles in End of Life care. Following the success of our previous Caldicott Guardian National Conferences, and feedback from our regular Caldicott Training Masterclasses, this conference will focus on developing your role in improving communication and information sharing at the end of life whilst ensuring patient confidentiality. 

“At end of life, information sharing is especially crucial. We are particularly unwell and vulnerable and we need information to be shared amongst those caring for us without having to take that on and be the bearers of information between everyone involved in our care. We must ensure patients have the right information at the right time and that information is shared easily and seamlessly amongst the professionals and services involved in their care… effective information sharing truly can transform lives and transform care. We must ensure we safeguard patient data, but this shouldn’t be seen as a barrier to seamless information sharing. We must ensure, at end of life, patients’ wishes are a top priority and ensure advance care plans and other documents are shared amongst and utilised by all professionals and services involved in a patients’ care, to ensure they have the support needed to have a good death.”

Lucy Watts MBE Ambassador & Young Avenger Together for Short Lives People in Partnership Steering Group Member Hospice UK

Released on 8th December 2020, the new 8th Principle 'Inform patients and service users about how their confidential information is used' is to make clear that patient and service user expectations must be considered and informed when confidential information is used, to ensure ‘no surprises’ about the handling or sharing of their data.

“Its not only about what you can do legally but what you should be doing morally and ethically. Many IG experts do not understand that there is an ethical side to this... sometimes its right to breach the law if it’s the right thing to do”

Dawn Monaghan Head of Data Sharing and Privacy NHS England.

This conference will enable you to:

  • Reflect on a person with experience of living with a terminal condition on the importance of information sharing
  • Understand and reflect on decision making around information sharing including the challenges of Covid-19
  • Update your knowledge on ethical decision making principles and frameworks and how you can implement these in decision making practice
  • Understand when information can be shared with relatives, other professionals and services, and when it cannot
  • Learn from established practice in the delivery of Caldicott Principles in End of Life care
  • Understand the legal and ethical implications around information sharing and the Duty of Candour
  • Explore how you can learn from deaths and share information with families, friends and staff to drive improvement
  • Understand the new role of the Medical Examiner
  • Ensure you understand the implications of information sharing after death including the complexities of the ethical as well as legal considerations in how we handle data relating to the deceased with relatives and bereavement services
  • Learn from the Coroners perspective on information sharing and disclosure
  • Understand the implications of GDPR to end of life care services, and how technology can improve information sharing
  • Self assess and reflect on your own practice
  • Supports CPD professional development and acts as revalidation evidence. This course provides 5hrs training for CPD subject to peer group approval for revalidation purposes

Chair & Speakers Include:

Mr Christopher Fincken

Independent Member & Former Chair
UK Caldicott Guardian Council

Andrew Latham

Senior Solicitor, Clinical Law
Capsticks Solicitors LLP

Fee Options

NHS, Schools & Public Sector



Voluntary sector & charities



Commercial organisations



Virtual Training



(Prices in brackets include VAT)


Additional delegate discount:

A discount of 15% will be applied to fees for any extra delegates.

Online discount:

A discount of 10% will be applied if you pay using the website.

Also of Interest

Supporting Organisations

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