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Caldicott Principles & Information Sharing in End of Life Care

This Conference is now Closed

Follow the conference on Twitter #CaldicottEndofLife

Find out more about virtual attendance

“At end of life, information sharing is especially crucial. We are particularly unwell and vulnerable and we need information to be shared amongst those caring for us without having to take that on and be the bearers of information between everyone involved in our care. We must ensure patients have the right information at the right time and that information is shared easily and seamlessly amongst the professionals and services involved in their care… effective information sharing truly can transform lives and transform care. We must ensure we safeguard patient data, but this shouldn’t be seen as a barrier to seamless information sharing. We must ensure, at end of life, patients’ wishes are a top priority and ensure advance care plans and other documents are shared amongst and utilised by all professionals and services involved in a patients’ care, to ensure they have the support needed to have a good death.”

Lucy Watts MBE Ambassador & Young Avenger Together for Short Lives People in Partnership Steering Group Member Hospice UK

Healthcare Conferences UK in association with Christopher Fincken Independent Member UK Caldicott Guardian Council, (Former Chairman) are pleased to announce this Virtual Conference which will focus on Information Sharing and Caldicott Principles in End of Life care. Following the success of our previous Caldicott Guardian National Conferences, and feedback from our regular Caldicott Training Masterclasses, this conference will focus on developing your role in improving communication and information sharing at the end of life whilst ensuring patient confidentiality. 

Released on 8th December 2020, the new 8th Principle 'Inform patients and service users about how their confidential information is used' is to make clear that patient and service user expectations must be considered and informed when confidential information is used, to ensure ‘no surprises’ about the handling or sharing of their data.

“Its not only about what you can do legally but what you should be doing morally and ethically. Many IG experts do not understand that there is an ethical side to this... sometimes its right to breach the law if it’s the right thing to do”

Dawn Monaghan Head of Data Sharing and Privacy NHS England.

This conference will enable you to:

  • Reflect on a person with experience of living with a terminal condition on the importance of information sharing
  • Network with fellow End of Life Care Professionals, Caldicott Guardians and IG Leads working to ensure adherence to Caldicott principles in end of life care services
  • Understand and reflect on decision making around information sharing including the challenges of Covid-19
  • Update your knowledge on ethical decision making principles and frameworks and how you can implement these in decision making practice
  • Understand when information can be shared with relatives, other professionals and services, and when it cannot
  • Learn from established practice in the delivery of Caldicott Principles in End of Life care
  • Understand the legal and ethical implications around information sharing and the Duty of Candour
  • Explore how you can learn from deaths and share information with families, friends and staff to drive improvement
  • Understand the new role of the Medical Examiner
  • Ensure you understand the implications of information sharing after death including the complexities of the ethical as well as legal considerations in how we handle data relating to the deceased with relatives and bereavement services
  • Learn from the Coroners perspective on information sharing and disclosure
  • Understand the implications of GDPR to end of life care services, and how technology can improve information sharing
  • Self assess and reflect on your own practice
  • Gain CPD accreditation points contributing to professional development and revalidation evidence

100% of delegates at our previous conference on this subject would recommend it to a colleague

Chair & Speakers Include:

Mr Christopher Fincken

Independent Member & Former Chair
UK Caldicott Guardian Council

Dr Sam Edward

Medical Director & Consultant, Palliative Medicine
North London Hospice

Virtual Attendance

Our online virtual events include a combination of live webcam presentations, training materials, video sessions and interactive exercises and discussion.

All you need is a quiet space, a good internet connection and PC or laptop with camera and microphone to allow you to see, hear and speak to the facilitator and other delegates. We will provide full instructions for accessing the platform along with login details. 

For the full benefits and all our virtual training titles click here

Virtual Training

Exhibition & Sponsorship Packages

This conference offers a valuable opportunity for industry suppliers to personally meet with their target audience where they will have time to talk and demonstrate the benefits of their products. High quality specialist audiences make having a presence at our events a highly targeted and cost effective marketing channel.

Why Exhibit?

Having a presence at this event will give you the opportunity to:

  • Demonstrate your product, system or service
  • Network and engage with your key audience  
  • Generate new business leads
  • Gain exposure for your brand and raise the profile of your organisation
  • Understand the current needs of your audience and challenges they’re facing
  • Update your knowledge of national policy and local developments  


Contact Carolyn Goodbody for exhibition and sponsorship prices, or to discuss a tailored package to suit your needs and budget.

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