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Improving End of Life Care for People with Dementia

Monday 12 November 2018
De Vere West One Conference Centre, London

Follow the conference on Twitter #EndofLifeDementia

“The number of people in the UK with dementia is increasing, with 1 in 3 people over the age of 65 now dying with dementia.”  National Council for Palliative Care

“Many people do not perceive dementia as a terminal condition, and yet the life expectancy for someone with dementia in a care home is the same as for someone with metastatic breast cancer. Firstly, we know that people with dementia do poorly in terms of end of life care but have many of the same symptoms in their last days of life. A particular issue is people in care homes – the majority of whom have dementia – being admitted to hospital for the last few hours or days of their life. The second reason is mental capacity, in that there is a fear that people in the later stages of dementia lack capacity and so there is reluctance in staff to be more proactive. Yet it is precisely because people with dementia will ultimately lose capacity that the opportunity to offer advance care planning at an earlier stage must not be lost. Dementia is now considered the leading cause of death in England and Wales.” NHS England 2017

“Dementia is a highly complex and challenging condition. It can present differently from person to person, having a huge impact on the patient, their family and their carers. The new NICE guideline highlights the need to properly train staff and says that carers should be helped to improve support for people living with dementia.” Prof Gillian Leng, Deputy Chief Executive, NICE 20th June 2018

This conference focuses on improving end of life care for people with Dementia. Dementia is now the leading cause of death in England and Wales. In England it is estimated that around 676,000 people have dementia. In the whole of the UK, the number of people with dementia is estimated at 850,000. It is therefore essential that we focus on improving end of life care for Dementia. The conference will demonstrate, through national updates and practical case studies how you can improve end of life care for people with dementia in your service. This event will update delegates on the new NICE National Clinical Guideline for Dementia and implications for end of life care. The New NICE Guideline Dementia: assessment, management and support for people living with dementia and their carers published on 20th June 2018 has specific recommendations on Palliative Care in Dementia including:

  • From diagnosis, offer people living with dementia flexible, needs-based palliative care that takes into account how unpredictable dementia progression can be.
  • For people living with dementia who are approaching the end of life, use an anticipatory healthcare planning process. Involve the person and their family members or carers (as appropriate) as far as possible, and use the principles of best-interest decision-making if the person does not have capacity to make decisions about their care.
  • For standards and measures on palliative care, see the NICE quality standard on end of life care for adults.
  • For guidance on care for people in the last days of life, see the NICE guideline on care of dying adults.
  • For guidance on best interests decision-making, see the NICE guideline on decision-making and mental capacity.
  • Encourage and support people living with dementia to eat and drink, taking into account their nutritional needs.
  • Consider involving a speech and language therapist if there are concerns about a person's safety when eating and drinking.
  • Do not routinely use enteral feeding in people living with severe dementia, unless indicated for a potentially reversible comorbidity.

NICE 20th June 2018


Benefits of attending

This conference will enable you to:

• Network with colleagues who are working to improve end of life care for people with dementia

• Understand the national context and developments including the palliative care implications of the June 2018 National Clinical Guideline for Dementia

• Learn from the lived experience of a carer

• Develop your skills in end of life care planning

• Understand how you can ensure care is aligned with the preferences and needs of the dying person and those

important to them

• Explore the challenges in predicting and recognising last days of life and managing uncertainty

• Understand how to meet the psychological needs of people with dementia at the end of life

• Learn from established practice in improving end of life care for people with dementia in care homes, avoiding

hospital admission and increasing preferred place of care

• Explore the nursing role in supporting people with dementia at the end of life

• Self assess and reflect on your own practice

• Gain CPD accreditation points contributing to professional development and revalidation evidence

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