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Improving End of Life Care for People with Dementia

Friday 13 September 2019
De Vere West One Conference Centre, London

Improving End of Life Care for People with Dementia
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Follow the conference on Twitter #EndofLifeDementia

“The Challenge’s ambition is for every person with dementia, and their carers and families, to receive high quality and compassionate care from diagnosis to end of life; with consistent access and care standards across the country. It aims for people with dementia to be involved with their care decisions, and for a focus on their wellbeing and quality of life to underpin the commissioning and providing of dementia services.” Dementia 2020 Challenge, UK Government, February 2019

“The number of people in the UK with dementia is increasing, with 1 in 3 people over the age of 65 now dying with dementia.” National Council for Palliative Care

“Dementia is a highly complex and challenging condition. It can present differently from person to person, having a huge impact on the patient, their family and their carers. The new NICE guideline highlights the need to properly train staff and says that carers should be helped to improve support for people living with dementia.” Prof Gillian Leng, Deputy Chief Executive, NICE 20th June 2018

This conference focuses on improving end of life care for people with Dementia. Dementia is now the leading cause of death in England and Wales. In England it is estimated that around 676,000 people have dementia. In the whole of the UK, the number of people with dementia is estimated at 850,000. It is therefore essential that we focus on improving end of life care for Dementia. The conference will demonstrate, through national updates and practical case studies how you can improve end of life care for people with dementia in your service. This event will update delegates on the new NICE National Clinical Guideline for Dementia and implications for end of life care. The NICE Guideline Dementia: assessment, management and support for people living with dementia and their carers published in 2018 has specific recommendations on Palliative Care in Dementia including:

  • From diagnosis, offer people living with dementia flexible, needs-based palliative care that takes into account how unpredictable dementia progression can be.
  • For people living with dementia who are approaching the end of life, use an anticipatory healthcare planning process.
  • Involve the person and their family members or carers (as appropriate) as far as possible, and use the principles of best interest decision-making if the person does not have capacity to make decisions about their care.
  • For standards and measures on palliative care, see the NICE quality standard on end of life care for adults.
  • For guidance on care for people in the last days of life, see the NICE guideline on care of dying adults.
  • For guidance on best interests decision-making, see the NICE guideline on decision-making and mental capacity.
  • Encourage and support people living with dementia to eat and drink, taking into account their nutritional needs.
  • Consider involving a speech and language therapist if there are concerns about a person’s safety when eating and drinking.
  • Do not routinely use enteral feeding in people living with severe dementia, unless indicated for a potentially reversible comorbidity.

NICE 20th June 2018

 

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