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Cancer Survivorship Summit: Improving outcomes for people living with and beyond cancer

Chair, Dr Kate Jenkins, Clinical Psychologist, Salisbury District NHS Foundation Trust
Kate is a Clinical Psychologist, who specialised in working with patients with physical health problems when she completed her Doctorate at Southampton University.
She has worked at Salisbury District Hospital since 2006 and is the Lead Psychologist for Cancer and Palliative Care, ITU and Trauma Orthopaedics, as well as providing psychological assessment and interventions to patients with other physical health problems across the hospital.

Living With and Beyond Cancer: Learning from the National Cancer Vanguard
Claire O’Rourke
, Associate Director, Greater Manchester Cancer
Claire has been working as a cancer services for over 15 years and has a wealth of clinical and senior management experience. She is passionate about cancer care and ensuring patients receive the best treatment and care, most importantly those patients are provided with psychological support throughout their cancer journey and beyond.
Claire explains "Greater Manchester’s approach to aftercare applying ‘The Recovery Package’ has been very successful and gained a standardised approach to aftercare"
Full powerpoint presentation

A Cancer Survivor’s Perspective
Rebecca Porta,
Chief Executive, Orchid (UK’s Leading Male Cancer Charity)
Rebecca discusses Orchids work on supporting Male Cancer Patients.
Orchid produce a number of different publications which have all been produced using feedback from Men.
47000 men are diagnosed with prostate cancer in the uk.
Prostate cancer is predicted to become the most common cancer by 2030.
Barriers that need addressing before and after care – men generally don’t want to seek help, men don’t have the ‘in the system’ attitude they don’t often visit the gp/doctors.

Dr Sophia Taylor, Senior Research Assistant, Macmillan Survivorship Research Group, University of Southampton, and Fran Williams, Programme Manager, Wessex Cancer Strategic Clinical Network, NHS England

Pre event abstract:
Improving the long-term quality of life of people living with and beyond cancer is a key ambition of the National Cancer Programme. A national quality of life metric is a set of standards by which we can measure this. It has been developed and managed by NHS England to develop a better understanding of how well people are living after cancer treatment and meet their changing needs.
Full powerpoint presentation

Amanda Walshe, Trust Lead Cancer Nurse, Northumbria Healthcare NHS Foundation Trust and Joanne Mackintosh, Macmillan Engagement and Co Design Project Manager, Northern Cancer Alliance, Northumbria Healthcare NHS Foundation Trust

Pre event abstract:
The Northern Cancer Alliance is one of the five pilot sites in England for the Quality of Life after Cancer Metric. Northumbria Healthcare NHS Foundation Trust as one of the 9 provider Trusts within the Alliance footprint will facilitate the collection data from patients who have received curative treatment for breast cancer.
The Trust Lead Cancer Nurse and Project Manager will describe the implementation process at this pilot site, including the challenges and successes they have faced along the way, levels of clinical engagement within the Trust and their progress to date.
Full powerpoint presentation

Delivering an effective Cancer Survivorship Programme
Kate Rawlings,
Secondary Care Clinical Lead for Living with and Beyond Cancer, Thames Valley Cancer Alliance
Kate is an experienced cancer nurse specialist. Since qualifying in 2001, she has worked in cancer and palliative care and is passionate about improving quality of care and outcomes after cancer. In addition to her role within the Thames Valley Cancer Alliance, Kate is currently the Cancer Rehabilitation Lead in Berkshire. She believes engagement and empowerment is the way forward in transformational change. 

Pre event abstract
2.5 million people are living with Cancer in the UK with this number set to rise to 4 million by 2030. By 2020 1 in 2 people will be diagnosed with cancer at some point in their lives. Up to 47% of people diagnosed are over 65 and from diagnosis 50% will survive over 10 years. However, we know that there is more to life than just survival. 25% of people have poor health or disability after cancer treatment, and often have multiple morbidities – not just cancer. The consequences of cancer and treatment are far reaching, sometimes unpredictable and often underestimated. 
We know that people require holistic support from diagnosis onwards, encompassing their physical, financial, psychosocial, and information and support needs, throughout their entire cancer journey. Care should be built around what matters to the person, and individuals should feel prepared for the life consequences of their cancer and its treatment, equipped to manage their care and with control over their life. (National Cancer Strategy 2015). Meeting the needs of this surviving population is a challenge which requires some ambitious transformation of health and social care services. The National Cancer Survivorship Initiative Taskforce (NHSE & Macmillan) developed the Recovery Package in 2014 which informed the National Cancer Strategy and the NHS Five Year Forward View. This has given us a better understanding and direction to focus on helping people to live well and thrive after cancer. Over the last few years, our understanding has grown of the critical success factors needed for this change. Through sharing good practice, innovation and challenges, we will move forward together in this much needed transformation process around cancer survivorship.
Full powerpoint presentation

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