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Transforming End of Life Care in Acute Hospitals: News and Updates

This conference focuses on improving end of life care for people in hospital. Through national updates and learning from the NHS Transform Programme, and case studies demonstrating improvement in practice the conference supported delegates in meeting the six national ambitions for end of life care within hospital, and improve care and outcomes for patients and their families.

Speakers and presentations

Putting personal experience first

Ian Leech, Community Engagement Manager, St. Giles Hospice

  • what does good look like?
  • meeting the six ambitions for end of life care within acute hospitals
  • learning from the Transform Programme: case studies

Ian Leech’s Full Presentation Click Here

In his presentation Ian Leech stated: 

"Why do we label it Person Centred Care?  Isn’t it just care, good care?"

"Why can’t we find out about an 80 year old, in the same way as we do a twenty year old?  My mum’s family photographs is Mel’s love of football.  My dad’s love of cricket is Mel’s love of music.  Find out about people. That is caring. That is kindness"

"We often learnt more from hospital waiting rooms than from health professionals"

"Remember the carer in this – we were scared of being abandoned, of what happens if . . ."

"Dying at home couldn’t have happened without the support of the hospital teams"

"Time didn’t matter, we weren’t governed by the clock, what we wanted, when we wanted it food wise. Not always possible in hospital I appreciate"

"Have those difficult conversations.  Make sure they happen. Don’t wait for the right time.  That right time may never come, but have the conversation"

"Went to thank consultants and staff for their help - they said they didn’t come to the funeral because they felt they’d let us down. Have to get over this feeling that death is always failure in hospitals/communities.  It isn’t.  If it isn’t done right, that’s failure!"

"We were with Mel 24 hours a day, no one knew how she was feeling better than us.  Tap in to that information"

"Be the good people and you will make a difference to families like ours and people like Melissa."

Ian Leech’s Biography:

Ian lives in Burton on Trent in Staffordshire and cared for his daughter Melissa after she was diagnosed with non-Hodgkin’s lymphoma in August 2007.  Following her death in May 2008, Ian has used his experience to help others.  Ian speaks to health professionals across the country on improving the quality of end of life care and bereavement support.  He was appointed Community Engagement Officer at St. Giles Hospice in July 2013 and has successfully developed an Understanding Bereavement workshop which he delivers across the St Giles catchment. He is a People in Partnership Member of the National Council for Palliative Care and a Dying Matters Champion.  Ian also facilitates the workshops for NCPC’s Compassionate Employers Programme.  In 2012, Ian was an Olympic Torchbearer.

Ian’s role as Community Engagement Officer is to take the wide and varied services of St Giles Hospice into communities across the St. Giles Hospice catchment area to enable people to have a better understanding about end of life care and bereavement support.  Part of his role is centred around changing attitudes in communities toward death, dying and bereavement.  His work involves working with volunteers and other staff to deliver projects in communities across St Giles’ catchment area. 

Ian has successfully piloted an Understanding Bereavement workshop which he delivers in schools, colleges, businesses and community groups.  Ian has set up craft groups and computer socials for the elderly within the hospice and his work around Dying Matters includes his ‘conversation board’ which encourages conversations around death and dying.  Ian enjoys cycling and walking, is a Dying Matters champion and in 2012 was an Olympic Torchbearer.

Learning from the Transform Programme: Supporting frontline clinicians and leaders for the work required to transform end of life care in acute hospitals

Anita Hayes, Quality Improvement Lead, The National Council for Palliative Care

  • what does good look like?
  • meeting the six ambitions for end of life care within acute hospitals
  • learning from the Transform Programme: case studies

Anita Hayes’s Full Presentation Click Here 

In her presentation Anita Hayes stated: 

"The aim of the programme is to improve end of life care in acute hospitals."

The aim of Transform - It encourages hospitals to develop a strategic approach to improve quality of care through; the involvement of patients, carers and the public; developing staff skills and confidence through education and development; quality assurance, measurement and evaluation.

Five Enablers

  • Recognising clinical uncertainty of recovery
  • Advance Care Planning
  • Shared electronic records
  • Priorities of care of the dying person
  • Rapid discharge

"It works by supporting the patient’s needs through a number of processes known as key enablers: 

  • Supporting and initiating Advance Care Planning with patients
  • Effective, fast and where necessary, rapid systems for discharge to  allow death in preferred place of care
  • Effective care after death, including bereavement
  • Co-ordination of care using Electronic Palliative Care Co-ordination Systems
  • Recognition and effective management of patients whose recovery is uncertain, using approaches such as the AMBER care bundle
  • Meeting the Priorities of Care for the Dying Person (England)"

The Transforming end of life care in acute hospitals programme is supported by the ‘How to Guide’ which has recently been revised and is available on NHS England’s website.

Leading Transformational Change is you as the: 

  • Influencer & communicator
  • Innovator & designer
  • Scientist &  systems thinker
  • Strategist & decision maker
  • Deliverer & adaptor
  • Coach & connector
  • Culture shaper & enabler

Anita Hayes’s Biography:

Anita has over 33 years of NHS and private sector health and care experience. As a registered nurse and lecture practitioner she worked in clinical practice in senior nursing and education roles until 2000 when she took on a project management role working with the cancer services collaborative. Her previous roles have included Nurse Director for the Kent and Medway Cancer Network, Service Improvement Lead with the Cancer Services Collaborative and nurse teacher. Anita has also worked in clinical service development and management within the private sector for a number of years. Between 2008 to 2013 she worked as the deputy director of the National End of Life Care Programme supporting implementation of the 2008 End of Life Care Strategy for England. She has completed a Harvard University leadership for improvement course and written articles for the European Palliative Care Journal of Nursing and co-authored a book ‘Pathways Through Care at the End of Life: A Guide to Person-Centred Care’ published 2013 Anita is absolutely passionate about improving the experience of care for all approaching the last phase of life and believes that dignity, respect and high quality end of life care are a fundamental human right for all. Working in close partnership with NHS England and the National End of Life Care Intelligence Network in Public Health England she was responsible for the development and maintenance of the National Information Standard (ISB150) for End of Life Care and was the chair of the national EPaCCS implementation and dataset management group. She is currently leading the development of an exciting and innovative new transformation  programme with NCPC funded by Macmillan Cancer Support, seeking to contribute to ongoing improvement and learning about how we best meet the needs of all those with end of life care needs.

EXTENDED SESSION: Predicting the end of life and managing uncertainty

Dr Adrian Blundell, Member, Guideline Development Group, Clinical Guideline on Care of the Dying Adult, NICE & Consultant Geriatrician, Professor in Medicine of Older People, Nottingham University Hospital

  • what can multi professional teams do to reduce the impact of uncertainty of recognising when a person is entering the last days of life?
  • managing patients whose recovery is uncertain
  • identifying how the uncertainty of recognising when a person is entering the last days of life influences information sharing, advanced care planning and the behaviour of healthcare professionals
  • ensuring all staff can recognise signs and symptoms that indicate that adults are likely to be entering their final days of life; or that they may be recovering?
  • managing and communicating uncertainties

Dr Adrian Blundell’s Full Presentation Click Here 

Dr Adrian Blundell’s Biography:

Adrian Blundell is a Consultant and Honorary Associate Professor in the Medicine of Older People based at Nottingham University Hospitals NHS Trust (NUH). His clinical time is split between the acute trust and the community. He graduated from the University of Nottingham and spent higher specialist training in Australia and the East Midlands. He was the geriatrician representative on the “Care of dying adults in the last days of life” guideline development group. In addition to his clinical work he is Director of Postgraduate Medical Education and Clinical Lead for the Undergraduate Electives Module.

Future events of interest:

Effective Non-Medical Prescribing in End of Life Care
Friday 6 October 2017 
De Vere West One Conference Centre, London

Non Medical Prescribing in Cancer Care
Friday 15 December 
De Vere West One Conference Centre, London

12 July 2017


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