Skip navigation

High quality care for all, now and for future generations as NHS England publish The ABC of Dementia by Alistair Burns

Professor Alistair Burns is NHS England’s National Clinical Director for Dementia. Here he explores the challenges and opportunities doctors can face in caring for patients with dementia.

Dementia is a challenge for everyone. It affects about 800,000 people in the UK, a number which is set to double in the next thirty years.

The number of people affected, however, can be two, three or four times that when you take into account the effect on carers and family members.

Dementia touches people at a personal level, where it can change lives. Nearly half of people with dementia feel a burden to others and say they have lost friends, and the societal impact is significant with the cost estimated to be £26 billion every year.

There is a stigma associated with dementia and for people over the age of 50 it is the most feared illness of all. Just over half the estimated number of people with dementia receive a formal diagnosis and, as such, are able to access the financial, emotional and practical help which follows.

One quarter of acute hospital beds are occupied by people with dementia, who stay on average a week longer than people with the same physical problems but without dementia.

Eighty per cent of care home residents have dementia and one third of people die with dementia.

While primarily a disorder of ageing, affects younger people too – an estimated 40,000 in the UK – and it is increased in individuals with learning disability. And 80 per cent of people with dementia have another long term condition.

ABC…three things that doctors can do: Be Aware, Be Bold, Be Curious

Be Aware of dementia. In most specialties, we come across people who talk about dementia – even in a maternity unit, patients may talk about their grandparents. It would be good to know about the signs and symptoms of dementia (there is a goodguide on NHS Choices) and become a dementia friend so you know some of the important myths surrounding dementia.

Be Bold: Break the barriers between general practice and specialist services.GPs with their local memory clinic colleagues could think about innovative ways of working to break the barriers between general practice and specialist services.

Forging innovative links with local Memory Services can facilitate early referral of people who are worried about symptoms such as memory loss which may be due to dementia.

Gnosall in the West Midlands is an excellent example where the diagnosis and management of people with suspected dementia happens largely in primary care. We know that GPs can diagnose dementia in patients with established disease and much more of the care and, most importantly, post diagnostic support can and should happen in primary care.

Things will not change overnight – diabetes used to be a condition which was the purview of specialist consultants but now most of the work around diabetes is carried out in primary care.

Over time, I hope our response to dementia as a health system is as strong as the one which has developed for diabetes, with most care provided in the community rather than by specialists in hospitals.

Be Curious: Read up on it. For people who want to know a bit more about dementia, there are a couple of booklets available from NHS England which summarise information about the condition in a digestible form. The dementia primer (“What you need to know”) is backed up by Dementia Diagnosis and management (“How to do it”) gives useful information on dementia.

Get dementia right for everyone

The issues surrounding, and the importance of dementia are common across the UK, with dementia strategies in Northern Ireland and Scotland and dementia guidance in Wales.

Dementia is a challenge for everyone and increasing interest in this most pressing of clinical issues is to be welcomed. It has ramifications for the whole health and social care economy – if you get things right for dementia, you will get things right for everyone.

  • This blog was first published on the General Medical Council website. The GMC has developed a new collection of guidance, tools and other resources to support doctors in caring for older patients. Find out more atBetter care for older people.


For original source:


Forthcoming relevant events:

Measuring and Monitoring Quality in Mental Health
Monday 23 March 
ICO Conference Centre
Improving Mental Health Crisis Care
Thursday 30 April 
Hallam Conference Centre
Masterclass: Mental Health Pathways
Monday 11 May 
Hallam Conference Centre
Masterclass: The Mental Capacity Act and Advance Decisions
Wednesday 13 May 
Cavendish Conference Centre
Foundation Certificate in Dementia: 2 Day Interactive Training Course
Monday 15 June — Tuesday 16 June 
Hallam Conference Centre

22 February 2015


    Partner Organisations

    The Tavistock and Portman NHS Foundation TrustInPracticeClinical Audit Support CentrePlayoutJust For Nurses
    GGI (Good Governance Institute) accredited conferences CPD Member ASGBI (Association of Surgeons of Great Britain and Ireland) professional partner BADS (British Association of Day Surgery) accredited conferences