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National Data Guardian for Health and Social Care: a consultation about priorities

The National Data Guardian’s role is to help to ensure that the public can trust that health and care information is securely safeguarded and used appropriately. The position was established in November 2014, when Dame Fiona Caldicott was appointed as the first postholder. In 2015 the Government committed to enshrining the role in law so as to enhance the NDG’s authority as the independent champion of patients and the public in relation to how health and adult social care data is used. In December 2018 Parliament passed a law to achieve this.

The new law means that the NDG will be able to issue guidance about the processing of health and adult social care data. Public bodies, such as hospitals, GPs, care homes, planners and commissioners of services, will have to take note of guidance that is relevant to them. So will organisations such as private companies or charities which are delivering services for the NHS or publicly funded adult social care. The theme of trust has always been at the very centre of the NDG role, with a focus on what can be done to help people to be aware of and more actively engaged in important decisions about how patient data is used and protected.

The NDG’s work is carried out working with other organisations and groups which influence and take an interest in the use of patient data. The National Data Guardian and her panel of advisors have been thinking about what the key priorities should be for the NDG as the role moves onto a statutory footing. This consultation sets out four proposed priorities (in no particular order) and potential areas of interest for the NDG within each of these.

  • Priority 1: Encouraging access and control: individuals and their health and care data
  • Priority 2: Using patient data in innovation: a dialogue with the public
  • Priority 3: Getting the basics right: information sharing for individual care
  • Priority 4: Safeguarding a confidential health and care system


Read the full consultation here

National Data Guardian Published: 18 February 2019

Also of Interest

The Caldicott Guardian 2019: Ethical Decision Making & The Duty of Candour
Monday 18 March, London

Caldicott Principles & Information Sharing Under GDPR
Tuesday 30 April, York

Caldicott Guardians National Annual Conference 2019
Friday 17 May, London

Caldicott Guardian Training Course
Friday 7 June, London

19 February 2019


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