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The first annual report of the Independent Information Governance Oversight Panel, chaired by Dame Fiona Caldicott and set up by the Secretary of State for Health in November 2013, has been released.

The report: Information: To share or not to share - The Independent Information Governance Oversight Panel’s report to the Secretary of State for Health  looks at whether health and social care organisations are sharing information wisely and preventing improper disclosure of personal data. It shows evidence of pockets of exemplary practice but the overall picture is of a need for improvement.

The IIGOP report concludes that a basic condition for building public trust is a commitment to more transparency about how data is collected, stored and used. Individuals must also be able to opt out of data sharing arrangements and be confident that their wishes are being respected consistently across the system.

“Good information governance in a health or social care organisation is essential for maintaining the safety and effectiveness of care, efficiency and trust. In a good organisation, information about patients and those seeking care will be shared appropriately among members of the team responsible at every stage of the care pathway. There will be no improper use of confidential personal data; patients and service users will be able to confide in the professionals without fear of unauthorised disclosure. And in a good health and social care system, there will be strict rules to allow data to be used for other purposes such as research and planning better services without breaching confidentiality.”

“Unfortunately the cultural change that we called for in relation to information governance has only emerged in parts of the system.” Dame Fiona Caldicott, 2nd January 2015

 

“Bringing about appropriate sharing of information at every stage of the care pathway required a fundamental change in professional and organisational culture. It was not realistic to expect that this would be achieved within a single year…. in too many organisations across England, the necessary change in culture has not been apparent”

“People’s lives may be lost if information is not shared appropriately across the care team looking after them. People’s trust may be damaged if information they have provided in confidence is improperly disclosed. When handling people’s confidential data for their care, health and care organisations must not compromise either their safety or individuals’ trust. All health and care organisations must share information wisely and protect it with vigilance, in the interests of all service users, all of the time.” 

“In spite of considerable effort by many people in many organisations, progress in implementing the recommendations of the Caldicott2 report has not been quick or comprehensive.” Dame Fiona Caldicott, 2nd January 2015

 

For original source: https://www.gov.uk/government/publications/iigop-annual-report-2014

 

Relevant forthcoming events:

Caldicott Guardian Training Course
Monday 19 January 
Hallam Conference Centre
London

 

Electronic Document Management in Healthcare: Delivering a Paperless NHS
Monday 2 February 
ICO Conference Centre
London

 

Caldicott Guardian Training Course for Beginners
Wednesday 11 February 
Hallam Conference Centre, London
London

 

 

Information Governance: Implementing the Government Response to Caldicott2
Tuesday 10 March 
Hallam Conference Centre
London

 

Legal Masterclass: Confidentiality, Data Protection and Information Governance
Monday 20 April 
Hallam Conference Centre
London

 

Setting Up and Running Virtual Clinics
Monday 20 April 
Hallam Conference Centre
London

 

Caldicott Guardian Training Course
Tuesday 21 April 
Hallam Conference Centre
London

 

 

Information Governance in Mental Health: Implementing Caldicott2 & the New Code of Practice on Confidential Information
Monday 11 May 
Hallam Conference Centre
London

 

Caldicott Guardian Training Course
Tuesday 19 May 
Hallam Conference Centre

 

Caldicott Guardian Training Course for Beginners
Tuesday 16 June 
Hallam Conference Centre
London

 

Caldicott Guardian Training Course
Wednesday 1 July 
Hallam Conference Centre
London

 

Electronic Document Management in Healthcare: Delivering a Paperless NHS
Wednesday 1 July 
Manchester Conference Centre
Manchester

 

Electronic Document Management in Healthcare: Delivering a Paperless NHS
Tuesday 3 November 
ICO Conference Centre
London

 

 

 


6 January 2015

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