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Updates from today's Care of Dying Adults in the last days of life Conference

Follow the conference on twitter#endoflifecare

This conference will focus on improving care of adults in the last days of life. Sessions will focus on putting personal experience first, monitoring adherence against the standards in practice, alignment of care with the preferences and needs of the dying person and those important to them, predicting and recognising last days of life and managing uncertainty, developing individual care plans and goals, symptom control and hydration and effective prescribing including anticipatory prescribing at the end of life.

The conference is chaired by Marie Cooper -  Practice Development Lead, Hospice UK. Marie is a registered nurse with extensive experience of clinical leadership and expertise in practice development. During her nursing career she has worked in a range of care settings within the UK, as well as a two- year sabbatical in a township in South Africa .More recently she co facilitated a palliative care  programme for nurses in Kerala, India. In addition to her role as Practice Development Lead for Hospice Uk she  works in a clinical capacity ,part time in a hospice. Maries role as Practice Development Lead for Hospice UK enables her to  focuses upon working with hospice clinical leaders and national organisations  to champion the  delivery of high quality, accessible palliative care for everyone who needs it. Her current key projects include the development of a Quality Improvement programme for hospice and palliative care services and  collaborating with NHSI  on a one year  programme  to improve  the end of life care in the Hospital Emergency department.

Tommy Whitelaw talked about his personal experiences as a carer and putting personal experience first. Tommy gave a moving talk about caring for his mother who had vascular dementia and was sadly approaching the end of her life.  His words bring into vivid focus how it feels to be a carer for someone ‘walking towards the crisis of their lives’. As he said, mums and dads ‘make it better’ for us…we need to help make it better for them. He is doing a tour TommyNTour  and today’s talk is the 732nd talk of 850 he is doing for free to try and encourage people to make a difference and transform the lives and deaths of those you love. He talked about starting his blog, which he found helpful being able to tell people how he felt

Professor Sam H Ahmedzai Specialist Committee Member Care of Dying Adults in the last days of life Quality Standard & Chair Guideline Development Group for the Clinical Guideline NG31 on Care of the Dying Adult NICE Emeritus Professor The University of Sheffield End of Life Care Audit Lead Royal College of Physicians & NIHR National Specialty Lead for Cancer Research Outside the Acute Hospital will deliver a session on Meeting the National Quality Standard for Care of Dying Adults in the last days of life, which will cover:

  • priorities and challenges in implementing the new NICE Quality Standard on Care of the Dying Adult in last days of life case studies - implementation in practice
  • monitoring adherence against the standard in practice 
  • the role of audit and research in improving end of life care


Dr Amy Proffitt Consultant in Palliative Medicine Barts Health NHS Trust Honorary Secretary The Association for Palliative Medicine Professional standards and Quality Improvement Representative JSC for palliative medicine will do a session on Symptom control, hydration & anticipatory prescribing Meeting the National Quality Standard and will talk about:

  • symptom control in the last day of life
  • ensuring adults in the last days of life have their hydration status assessed daily, and a discussion about the risks and benefits of clinically assisted hydration
  • effective anticipatory prescribing: anticipating new symptoms that may arise and prescribing medicines in advance to manage them
  • ensuring that there is a supply of drugs in the patient’s home, combined with the apparatus needed to administer them, with the intention that they are available to an attending clinician for use after an appropriate clinical assessment
  • delivering effective medication review at the end of life
  • issues with controlled drugs


Powerpoint Presentation

Jane Eades Head of Quality Improvement Marie Curie's session entitled Meeting the Standard, gathering evidence and identifying areas for improvement, experience from the independent sector will look at Clinical audits, Compliance visits, Outcome measures, Incidents, complaints and feedback and learning from the patient

Powerpoint Presentation

Also of Interest:

Improving End of Life Care for People with Dementia
Friday 15 June 2018, London


Caldicott Principles & Information Sharing in End of Life Care
Monday 25 June 2018, London


Effective Non-Medical Prescribing in End of Life Care
Monday 16 July 2018, London


Effective Nurse Prescribing in End of Life Care
Monday 16 July 2018, London


Improving Cancer Diagnosis
Monday 1 October 2018, London

25 May 2018


    Partner Organisations

    The Tavistock and Portman NHS Foundation TrustInPracticeClinical Audit Support CentrePlayoutJust For Nurses
    GGI (Good Governance Institute) accredited conferences CPD Member ASGBI (Association of Surgeons of Great Britain and Ireland) professional partner BADS (British Association of Day Surgery) accredited conferences