News and Presentations for todays Improving End of Life Care for People with Dementia conference
Putting personal experience first
Ian Donaghy, Author ‘DearDementia’ & ‘The Missing Peace’
Ian Donaghy’s infectious enthusiasm & humorous empathetic approach have made him a popular conference speaker all over the UK. Barbara Pointon MBE describes him as “Highly entertaining & deeply thought-provoking”.
During a 20 year career teaching young people with learning difficulties Ian was seconded by the Home Office to set up inclusion units in schools for vulnerable students focusing on the individual, celebrating what they can do to raise their aspirations. Ian took his “focus on the individual” into the world of care in 2009 and quickly used his innovative teaching & learning styles to win Care Trainer of the Year at the British Care Awards. Ian delivers bespoke learning from for clients as diverse as Yorkshire Ambulance Service, Wilf Ward Family Trust, Mind, local authorities, large care providers, the NHS & has recently hosted the CQC’s Leadership Conference in Westminster.
Ian, speaking at the conference this morning said:
"Most people talk to your shadow and ignore you when you have dementia"
"We don’t think about tomorrow because it’s tomorrow"
"End of life wishes are so important and we need to focus on what we can do for the person rather than the medicine and drugs"
"10 things challenge - Think of 10 thinks that really matter for your mum and dad or Nan and Grandad, most people will struggle"
"To get someones end of life perfect is the greatest gift you can give them"
Developing a model for Dementia Palliative Care
Dr Siobhán Fox, Project Manager, The Model for Dementia Palliative Care Project, Centre for Gerontology and Rehabilitation, School of Medicine University College Cork
Dr Siobhán Fox obtained her PhD in psychology in 2013, and since then has spent her post-doctoral career researching palliative care needs of people with neurodegenerative diseases. She previously co-ordinated and co-wrote the Irish National Guidelines for Palliative Care for People with Parkinson’s Disease. More recently she has focussed on palliative care needs of people with dementia, and younger onset dementia. Dr Fox also lectures in this area, and is a lecturer and core module coordinator on the MSc in Dementia at University College Cork. Currently, Dr Fox is Project Manager on The Model for Dementia Palliative Care Project. This is a 3-year Project which commenced in late 2017, and is funded by the Health Research Board. The Project aims to develop a service delivery model for community-based dementia palliative care for use by the Irish Health Service Executive.
Siobhan, speaking this morning said:
"The number of people diagnosed with dementia will more than double in the next 20 years"
"1 in 10 people diagnosed with dementia is under 65 years of age"
"Palliative care can be appropriate at any stage of Dementia, in particular advance care planning needs to be considered as early as possible in Dementia"
"The person living with dementia and their family should be considered as part of the care team"
Improving end of life care for people with dementia in care homes & the community
Dr Gill Garden, Consultant in Older People’s Services, United Lincolnshire Hospitals NHS Trust
Pre Event Abstract
Approximately 420,000 people live in care homes registered for the care of older people in England and Wales; seventy percent have dementia. Their prognosis is poor with 97,000 dying each year and so it is inevitable that the health of most residents will deteriorate during their residency. Despite their poor prognosis and hence predictable health crises care home residents are often managed reactively resulting in admission to hospital. Although admission to hospital might give access to all the benefits of modern medicine, those who die in hospital may spend the last days of their life in a noisy, alien environment, cared for by strangers and separated from those who love them or know them. National surveys have shown that although most people would prefer to die at home, almost half of all deaths and a third of people living in care homes die in hospital.
Full PowerPoint Presentation
Also of Interest
Care of Dying Adults in The Last Days of Life
Monday 29 April 2019, York
Clinically Assisted Nutrition and Hydration Supporting Decision Making: Ensuring Best Practice
Friday 10 May 2019, London
Falls Prevention & Management in Older People: Reducing Falls and Harm from Falls
Thursday 23 May, Birmingham
11 March 2019