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News and Updates for todays Managing Continence Care at the End of Life

Learning from personal experience of caring for a loved one at the end of life
Tommy Whitelaw,
Carer, Hon Master, Open University - Health, Social Care & Policy, UK Project Lead Dementia Carers Voices Health and Social Care Alliance, Scotland (the ALLIANCE)
For five years Tommy Whitelaw was a full-time carer for his late mother Joan who had Vascular Dementia, and in 2011 Tommy undertook a walk around Scotland’s towns and cities to collect hundreds of life story letters detailing the experiences of individuals caring for a loved one living with dementia.
Since then, he has engaged with thousands of carers through his ‘Tommy on Tour’ blog and as UK Project Lead with the Health and Social Care Alliance’s Dementia Carer Voices project, conducting frequent talks to health and social care professionals and carer organisations across Scotland, to raise awareness of the impact of dementia on families and the importance of empowering carers in carrying out their difficult but vital role. The project’s ‘You Can Make A Difference’ campaign has now reached roughly 160,000 people across 800 talks, collecting 22,500 pledges to make a difference.
Full PowerPoint Presentation

Providing dignified respectful continence care to older people at the end of life
Linda Nazarko OBE,
Nurse Consultant Physical Healthcare, West London NHS Trust
Pre Event Abstract
The prevalence of urinary incontinence rises with age as age related changes make it more difficult to maintain continence. Long term conditions and treatments prescribed to treat conditions such as heart failure can lead to urgency. Frailty can make it difficult for an older person to respond the the demands of the bladder. At end of life mobility is often compromised and the person can experience extreme fatigue. Care givers can obtain support during the day but often struggle alone at night. Caregivers can become exhausted and situation can reach breaking point. Working with the older person and caregivers to determine the goals of care and how to meet them can make a huge difference. It can take the pressure of the entire family, meet a person’s needs and enable the person to stay at home. This presentation aims to enable nurses to understand the problems older people may experience and how to work with the older person and caregivers to develop solutions that maintain dignity and enhance quality of life.
Full PowerPoint Presentation


Effectively managing continence within a hospice setting
Jackie Whiller,
Consultant Nurse, Mountbatten Hospice
Pre Event Abstract
To achieve a good death, I believe that the management of urinary/bowel incontinence at end of life should be as much a priority for nursing attention as managing symptoms such as pain and nausea.  
Within our hospice we have 16 beds and treat many patients, some actively and for transfer, for respite, rehabilitation and some for End of Life Care. The patients that come to our inpatient unit have varying needs. It is very important to ensure a good assessment of each patient is undertaken.  All our patients are treated with the upmost dignity and individuality.  Managing continence effectively is one of the most important aspects of the nurse’s role Farrington et al (2013).  How you manage someone’s continence problems could have a huge impact on their confidence and comfort.
Full PowerPoint Presentation

Also of Interest

Effective Nurse Prescribing in End of Life Care
Friday 5 April 2019 London

Care of Dying Adults in The Last Days of Life
Monday 29 April 2019 York

End of Life Care: Legal Issues Masterclass
Friday 10 May 2019 London

Reducing & Managing Pressure Ulcers at the End of Life: Third National Conference
Friday 10 May 2019 London

Clinically Assisted Nutrition and Hydration Supporting Decision Making: Ensuring Best Practice
Friday 10 May 2019 London


25 March 2019


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